Prayers needed

[Wewild]

For sure.

 

[Jovid]

Thanks for all the prayers.....the baby is still fighting.....I know God has His hands on him.

 

[Isomade]

Thanks for all the prayers.....the baby is still fighting.....I know God has His hands on him.

Thanks for the update Jovid. I have been keeping my eye on this thread for updates. He is still in my thoughts and prayers.

 

[Jovid]

Thanks again for all the prayers......they have now confirmed that the baby has Pompes disease which is treatable and he will NOT need a heart transplant......Praise God.

The treatment will require enzyme replacement therapy every two weeks for the rest of his life or at least until God gives the doctors the knowledge of a different way to treat this disease.

 

[Isomade]

Thanks again for all the prayers......they have now confirmed that the baby has Pompes disease which is treatable and he will NOT need a heart transplant......Praise God.

The treatment will require enzyme replacement therapy every two weeks for the rest of his life or at least until God gives the doctors the knowledge of a different way to treat this disease.

God is good! I'll bet his parents are relieved and jumping for joy. :banana: May God bless them and help with a cure.

 

[papavillars]

how are they going to replace his enzymes? The baby and family are in our prayers.