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<blockquote data-quote="lavacarancher" data-source="post: 1247984" data-attributes="member: 9198"><p>Grey, I started to send you a PM because I didn't want to hijack this thread but thought that other folks might benefit from this information. </p><p></p><p>There are TWO tests for Lyme. One is less than 50% accurate and is most used by doctors because it is the only one paid (partially) for by the insurance companies. Not only is this test inaccurate it also provides false positives and positive false test results. The other test is nearly 100% accurate. It is a genetic test and fairly expensive and not paid for by our insurance companies. They look for the genetic footprint of the Lyme bug. There are many manifestations of Lyme including Rheumatic fever, Fibromyalgia, Chronic Fatigue Syndrome and many more. There is some evidence that Lou Gheric Disease (ALS) may be connected to Lyme. To make matters worse, the board of doctors who are supposed to direct the research and determine what (or what not) the insurance companies pay for was/is corrupt and have been convicted for their crimes. DIL has had Lyme for about 15 years and my Son now has Lyme. Lyme, if left undiagnosed, untreated or mistreated is always fatal. Fortunately, DIL has received unconventional treatment and is in remission. Sons encounter was diagnosed (accurately) fairly quickly and has been treated. Both are doing OK - for now.</p></blockquote><p></p>
[QUOTE="lavacarancher, post: 1247984, member: 9198"] Grey, I started to send you a PM because I didn't want to hijack this thread but thought that other folks might benefit from this information. There are TWO tests for Lyme. One is less than 50% accurate and is most used by doctors because it is the only one paid (partially) for by the insurance companies. Not only is this test inaccurate it also provides false positives and positive false test results. The other test is nearly 100% accurate. It is a genetic test and fairly expensive and not paid for by our insurance companies. They look for the genetic footprint of the Lyme bug. There are many manifestations of Lyme including Rheumatic fever, Fibromyalgia, Chronic Fatigue Syndrome and many more. There is some evidence that Lou Gheric Disease (ALS) may be connected to Lyme. To make matters worse, the board of doctors who are supposed to direct the research and determine what (or what not) the insurance companies pay for was/is corrupt and have been convicted for their crimes. DIL has had Lyme for about 15 years and my Son now has Lyme. Lyme, if left undiagnosed, untreated or mistreated is always fatal. Fortunately, DIL has received unconventional treatment and is in remission. Sons encounter was diagnosed (accurately) fairly quickly and has been treated. Both are doing OK - for now. [/QUOTE]
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