Asking for more prayers for my mother

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Ky hills":hxnsxf87 said:
hurleyjd":hxnsxf87 said:
What is your mother's age.

She is 89, she has been very strong and capable up until all this. She is just now acting anywhere near her age. Prior to this people have been very surprised she was that age.

Age is one thing that is hard to over come. I am 78 and the wife is 75 cannot do as much as I did when younger. I still try but have been in for ever test you could think off. Lost sight in the left eye totally black for about 3 minutes. Checked for everything to see if they could come up with a cause. Nothing after mri, ct scan and eye specialist.
 
greybeard":1hy10q7z said:
I have a friend in Frankfort Ky that has had a pacemaker for a few years now, and he seems to think it is doing it's job, but he was lifeflighted with his heart rate and BP way way up there when his afib first showed up.
Shocking the heart 'back into (sinus) rhythm' works for some, not for others. Ablation is the same way...sometime they get the right nerves, sometimes not. Ablation is rarely a one time/get it right first time deal.
Success is barely over 60% for an ablation - and you're right, assuming they cauterize the right nerves. We were told in addition to the iffy success of the cardioversion, it's generally a temporary fix. Plus you have to make the appointment in advance, empty stomach, it's over an hour drive for us. Tried a couple times but he was out of a-fib by the time of the appointment. I offered to zap Hubby with the cattle prod a couple times but he declined ;-)
 
greybeard":22d6vdhu said:
I never took Eliquis, but it is my understanding, that there are now reversal agents for both Eliquis and Xarelto to be used in life threatening situations..

What is the reversal agent for eliquis?
The U.S. Food and Drug Administration (FDA) has approved Portola Pharmaceuticals' Andexxa, the first antidote indicated for patients treated with rivaroxaban (Xarelto) and apixaban (Eliquis), when reversal of anticoagulation is needed due to life-threatening or uncontrolled bleeding.May 7, 2018


https://www.dicardiology.com/article/fd ... coagulants


I am glad to know they finally have something that can be used. It has some pretty significant potential side effects but if you are at risk of bleeding out, it is good to know there is something available.
 
sstterry":2xnvnpjd said:
greybeard":2xnvnpjd said:
I never took Eliquis, but it is my understanding, that there are now reversal agents for both Eliquis and Xarelto to be used in life threatening situations..

What is the reversal agent for eliquis?
The U.S. Food and Drug Administration (FDA) has approved Portola Pharmaceuticals' Andexxa, the first antidote indicated for patients treated with rivaroxaban (Xarelto) and apixaban (Eliquis), when reversal of anticoagulation is needed due to life-threatening or uncontrolled bleeding.May 7, 2018


https://www.dicardiology.com/article/fd ... coagulants


I am glad to know they finally have something that can be used. It has some pretty significant potential side effects but if you are at risk of bleeding out, it is good to know there is something available.

That's good that there is an antidote for those drugs now. It still doesn't address the life altering conditions that are now affecting my mother. The brain bleeds and hemorrhagic stroke have left her in a very bad condition. She has went from being able to care for herself along with some help to being unable to care for herself at all. We are hoping and praying that she will gain back some of her ability but right now that seems pretty far away.
 
Ky hills":36ln0jn3 said:
sstterry":36ln0jn3 said:
greybeard":36ln0jn3 said:
I never took Eliquis, but it is my understanding, that there are now reversal agents for both Eliquis and Xarelto to be used in life threatening situations..

What is the reversal agent for eliquis?
The U.S. Food and Drug Administration (FDA) has approved Portola Pharmaceuticals' Andexxa, the first antidote indicated for patients treated with rivaroxaban (Xarelto) and apixaban (Eliquis), when reversal of anticoagulation is needed due to life-threatening or uncontrolled bleeding.May 7, 2018


https://www.dicardiology.com/article/fd ... coagulants


I am glad to know they finally have something that can be used. It has some pretty significant potential side effects but if you are at risk of bleeding out, it is good to know there is something available.

That's good that there is an antidote for those drugs now. It still doesn't address the life altering conditions that are now affecting my mother. The brain bleeds and hemorrhagic stroke have left her in a very bad condition. She has went from being able to care for herself along with some help to being unable to care for herself at all. We are hoping and praying that she will gain back some of her ability but right now that seems pretty far away.

You are entirely correct. But have hope that the body is a very resilient thing. There can be a lot of improvement over time. But there is no guarantee. My thoughts and prayers are with her, you, and your family!
 
Ky hills":jkyou473 said:
That's good that there is an antidote for those drugs now. It still doesn't address the life altering conditions that are now affecting my mother. The brain bleeds and hemorrhagic stroke have left her in a very bad condition. She has went from being able to care for herself along with some help to being unable to care for herself at all. We are hoping and praying that she will gain back some of her ability but right now that seems pretty far away.
As are all of us Ky hills.
 
As of Wednesday, the doctors have come to agree on an ablation, and then a pacemaker immediately afterwards, scheduled for Monday. That is if she can survive some of the nurses, and hospital doctor. Wednesday morning, we called a nurses attention to the fact that she was about to give her medicine that had been taken off her chart unless her blood pressure was a certain high rate. She argued that she had given it to her 3 days prior, when she was there. She finally agreed to go look at her records, and she came back in and said, "Sorry my bad." The same nurse, 3 days prior had not looked at the records, and came in and asked my mother if she had taken her medication already, not a good idea I don't think to ask someone trying to recover from a stroke if they have taken their medicine. We were very fortunate to have some really good proficient, and professional nurses in between times. There have been a couple nights that we were very nervous about leaving Mama in some of the nurses care. She is in a Neuro ICU, you would think that their would be cream of the crop staff there, but apparently not all of them. One night, we really suspected that the nurse was on some kind of drugs. Thankfully she hasn't been there anymore and hoping she isn't again. Yesterday she had to be given electrolyte type fluids because they dehydrated her with diuretics the day before. We tried to explain to them that she is feeble and easily dehydrated but they insisted that being a little dehydrated was good for someone with her condition. They gave her multiple doses, and then the genius idiots were surprised at the results, gee tried to tell ya, so now my mother had to endure getting poked again for another IV because of their stupidity. Sorry for the rant but after a near month of this crap we have all about had it physically and emotionally.
I apologize for posting these negative posts about our experiences, but am doing so in a PSA manner. There is so much that we were not prepared for when Mama started having these issues, at first we took everyone at their word, within reason, Then learned that within reason was a subjective term as all of them are experts in their own minds and few truly are in reality. Some of those medical professionals do truly care and try their best to do their jobs, some go above and beyond. Unfortunately others are so into themselves that they don't care about anything or anybody, and will tell what ever necessary to suit their needs at that moment. My wife said the other day if something happened to her just take her to the vet, she said he is an honest and caring person.
 
You really need to go to the Hospital Administrator and advise them of this! This is totally unacceptable. At the very least you should contact the Hospital's Risk Manager and advise them that you are documenting every single screwup in case it is necessary!
 
I cannot believe that a nurse would even try to give a medication that she "gave 3 days prior" without looking at the chart. I have to agree with sstterry totally on going to the hospital administrator and making sure you keep a detailed log of all the screwups. Also, keep notations of all the ones that have gone above and beyond. And unfortunately, I would make a call to my lawyer and mention what is going on so that it is documented that you feel you have cause for concern for a possible lawsuit.
I hate the way we are "sue crazy" in this country, but in times of outright negligence in the job, like that nurse wanting to give medicine that is not on the chart, you have to make someone accountable for their failure to follow doctors orders etc. Praying that this may be the answer to your mom's difficulties.
 
farmerjan":2p14a2bq said:
I cannot believe that a nurse would even try to give a medication that she "gave 3 days prior" without looking at the chart. I have to agree with sstterry totally on going to the hospital administrator and making sure you keep a detailed log of all the screwups. Also, keep notations of all the ones that have gone above and beyond. And unfortunately, I would make a call to my lawyer and mention what is going on so that it is documented that you feel you have cause for concern for a possible lawsuit.
I hate the way we are "sue crazy" in this country, but in times of outright negligence in the job, like that nurse wanting to give medicine that is not on the chart, you have to make someone accountable for their failure to follow doctors orders etc. Praying that this may be the answer to your mom's difficulties.

Thank you for your advice. We have talked to charge nurses at the other hospital that we did not want her to go back to. That situation was awful in that the staff treated my mother very harshly and rough to the point that she was afraid there. The doctors also failed to consider heart issues. When we finally obtained her release document there are some areas with huge incorrect statements. Where she is now the staff is much kinder to her, but some very troubling events have occurred there in addition to what I mentioned earlier.
We are not the sue happy kind but as my wife and I have discussed that is likely the only thing that gets these peoples attention. Something has to be changed no one should have to have these experience. It's hard enough watching loved ones go through illness, and then all of the unecessary craziness. We have several friends in the medical field and unfortunately they say our experiences are all too common. Some of them actually have said that they fear ever being in a hospital.
 
sstterry":27t7e6ww said:
You really need to go to the Hospital Administrator and advise them of this! This is totally unacceptable. At the very least you should contact the Hospital's Risk Manager and advise them that you are documenting every single screwup in case it is necessary!

Thanks for the advice. We did talk with charge nurses at the first hospital about the actions of some of the nurses. We are planning on doing the same in this situation as well and may go higher up. Not sure if it will change anything for future patients but hopefully it does.
 
Well, my mother had surgery last Monday, she had an ablation, and a pacemaker put in. She was released from the hospital on Thursday and we were thankful to be able to get her back into the same rehab facility that she was in for a week after the first hospital stay. As of last night she seemed to be doing better cognitively and was more coherent than she has been in a long time. She has had moments of that over the last few weeks but its been like a yo-yo, hoping she will still be on the upswing today.
She is able to walk much better than a month ago, but still gets real tired from it.
I'm very thankful for the folks from here on this forum as well as my cousin who recommended us to take her another hospital for a second opinion, I truly believe that saved her life and will give her a better quality of life. The second hospital stay was a much better experience overall. The doctors actually tried to find the problems and solve them, rather than the first bunch that basically said she's old she is stable, what more could you want. The nurses were much better and kinder to her there with the exception of two. One possibly was a drug addict, we were fortunate that she was only there one night during the two week stay. Another was there several nights, she did her job to the bare minimum of her ability and with a scowl on her face. Right before we left the hospital for rehab, my wife gave the nurses in the ICU where she was most of the time there, a basket of snacks and candy. She gave some of the nurses and a tech that had been exceptionally good with Mama a card with a thank you note and a small gift certificate. She also wrote the doctor that did the surgery a thank you note for his kindness as well.
Thank you to all here on this forum for your thoughts and prayers. It has been really neat to be able to tell Mama that she has had good thoughts and prayers coming from all across this country and other countries as well.
 
There are Nurse Ratcheds everywhere, but the ratio of them to good dedicated health care professions is very very low. Good to hear your mom is doing better.
 
Prayers that she continues to improve at the care facility while she is rehabbing. Believe me, the nurses and all that you said 'thank yous' to, and the doctor and support staff, will remember and are appreciative. Have a friend that has been a nurse and she talks about the ones who are kind to her, and the thank yous she has gotten have really meant alot to her. There's always someone that does their job to the minimum, but it is that way no matter what. It does make you appreciate the ones that go above and beyond with just plain kindness and concern.
 
The struggle continues for her. She had fluid drained from her lung Sunday. And had a lot more fluid in her body. She was transferred back to a hospital in Lexington because they had found a mass in her lung that was causing fluid to build back up. They thought it was likely cancerous. We are waiting now for this hospital to do its tests and decide the course of action to take.
 
Ky hills":11e2jj49 said:
The struggle continues for her. She had fluid drained from her lung Sunday. And had a lot more fluid in her body. She was transferred back to a hospital in Lexington because they had found a mass in her lung that was causing fluid to build back up. They thought it was likely cancerous. We are waiting now for this hospital to do its tests and decide the course of action to take.

Very sorry to hear that. I just heard this week that one of our family members has lung cancer. They were removing it this week. She is only 50.
 
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